The quality of life instruments were translated into Norwegian following the criteria of Guillemin et al (1993). First, two independent English-speaking professional translators translated the questionnaires from English to Norwegian. Then they were back-translated by two other independent professional translators. After a comparison of the English and Norwegian versions, changes were made if necessary. The MAPI institute aims to develop translations of health-related quality of life instruments. The website is www.mapi-research-inst.com
Quality of Life Index(QLI) (Ferrans & Powers)
Description
The QLI consists of 34 items that are measured on two parameters: a person's satisfaction with various domains of life and the importance attached to the same domains. Subscales are: health/functioning, socio-economic, psychological/spiritual, family. Scaling responses are on 6-point Likert scales from "very satisfied" to "very dissatisfied" and from "very important" to "very unimportant."
(Contact Tone Rustøen, Department of Nursing Education, Oslo College, Bjerregarrdsgt. 21, 0172 Oslo or tone.rustoen@su.hioslo.no for access to the full instrument.)
References:
Rustøen T. Hope and quality of life in newly diagnosed cancer patients. Doktoravhandling. Universitetet i Bergen 1998.
Rustøen T, Wiklund I, Hanestad BR, Burckhardt CS (1999). Validity and reliability of the Norwegian version of the Quality of Life Index - a nursing tool for measuring quality of life of cancer patients. Scandinavian Journal of Caring Sciences, 13, 96-101.
Ferrans CE (1990). Quality of life: conceptual issues. Seminars in Oncology Nursing, 6, 248-254.
Ferrans CE (1996). Development of a conceptual model of quality of life. Scholarly Inquiry for Nursing Practice: an International Journal, 10, 293-304.
Ferrans CE & Powers MJ (1985). Quality of life index: development and psychometric properties. Advances in Nursing Science, 8(1), 15-24.
Ferrans CE & Powers MJ (1993). Quality of life of hemodialysis patients. ANNA Journal, 20, 575-581.
Quality of Life Scale (Burckhardt/Flanagan)
Description
The QOLS is a 16-item domain-specific scale developed by John Flanagan and modified for use in chronic illness populations by Carol Burckhardt. In the English language version it uses a 7-point "delighted-terrible" scale. In the Norwegian version it uses a 7-point "satisfaction" scale.
(See attached files for both English language and Norwegian versions).
References:
Wahl AK. Quality of life and coping among patients suffering from psoriasis. Doktoravhandling, Universitetet i Bergen, 1999.
Wahl A, Burckhardt CS, Wiklund I, Hanestad BR (1998). The Norwegian version of the Quality of Life Scale (QOLS-N). Scandinavian Journal of Caring Sciences, 12, 215-222.
Archenholtz B, Burckhardt CS, Segesten K (1999). Quality of life of women with systemic lupus erythematosus or rheumatoid arthritis: domains of importance and dissatisfaction. Quality of Life Research, 8, 411-416.
Burckhardt CS (1985). The impact of arthritis on quality of life. Nursing Research, 34, 11-16.
Burckhardt CS, Archenholtz B, Bjelle A (1993). Quality of life of women with systemic lupus erythematosus: a comparison with women with rheumatoid arthritis. Journal of Rheumatology, 20, 977-981.
Burckhardt CS, Archenholtz B, Bjelle A (1992). Measuring the quality of life of women with rheumatoid arthritis or systemic lupus erythematosus: a Swedish version of the Quality of Life Scale (QOLS). Scandinavian Journal of Rheumatology, 21, 190-195.
Burckhardt CS, Clark SR, Bennett RM (1993). Quality of life in fibromyalgia: a comparative analysis. Journal of Rheumatology, 20, 475-479.
Burckhardt CS, Clark SR, O'Reilly CA, Bennett RM (1997). Pain-coping strategies of women with fibromyalgia: relationship to pain, fatigue, and quality of life. Journal of Musculoskeletal Pain, 5, 5-21.
Burckhardt CS, Woods SL, Schultz AA, Ziebarth DM (1989). Quality of life of adults with chronic illness: a psychometric study. Research in Nursing and Health, 12, 347-354.
Thulin LB. Sammenhengen mellom stress, mestring og livskvalitet ved reumatoid artritt. Hovedfagsoppgave, Universitetet i Bergen, 1997.
World Health Organization's Quality of Life Assessments (WHOQOL - 100 and WHOQOL - brief)
The WHOQOL instrument is currently being developed in multiple countries. In Norway anyone interested in the instrument and its current status should contact Dr. Mary Kalfoss, at the Menighetssøsterhjemmets College, Linstowsgt 5, 0166 Oslo or Berit Rokne Hanestad, berit.hanestad@isf.uib.no at the Section for Nursing Science, Bergen University, Ulriksdal 8c, N5009, Bergen. Masters and doctoral students in Bergen and Oslo as well as other health professionals in a variety of acute, chronic and community-based settings have begun or completed projects using this instrument. A detailed report on the translation of the instrument is available in Kalfoss MH, Ringel, KS, Gundersen V (1998). the World Health Organization's Quality of Life Assessments (WHOQOL - 100 and WHOQOL - brief) knowledge development: clinicians and researchers in partnership. Proceedings from the 9th Biennial Conference and Workshop of European Nurse Researchers, July 5-8, 1998, Helsinki, pp. 376-387.
References:
Liv Berit Thulin. Sammenhengen mellom stress, mestring og livskvalitet ved reumatoid artritt. Hovedfagsoppgave, Universitetet i Bergen, 1997. Liv.Thulin@hib.no
Kjersti Wågsæther. Livskvalitetsskjema WHOQOL - 100. Oversettelse, tilpasning og validering, Hovedfagsoppgave, Universitetet i Bergen, 1988. Kjersti.Wagsether@hib.no
Tone M. Norekvål. Kvinnehelse i fokus - ei survey av 147 kvinner sin opplevde livskvalitet og meistring etter hjerteinfarkt. Hovedfagsoppgave. Universitetet i Bergen, 1998. Tone.Norekval@haukeland.no
Bente Paulsen. Hjemmerespirator til å leve med. Hovedfagsoppgave. Universitetet i Bergen, 1998.
Marjolein Iversen. Type II diabetikere i kommunehelsetjenesten. En kartlegging av livskvalitet, behov for opplæring og sosial støtte hos personer med Type II diabetes. Hovedfagsoppgave, Universitetet i Bergen 2000. Marjolein.iversen@hib.no
Last updated 5 September 2000