New EBV-MS Video Highlights Groundbreaking Research and Human Stories Behind the Science
A new video from the EBV-MS research project is set to shed light on the role of the Epstein-Barr virus (EBV) in multiple sclerosis (MS), offering a glimpse into the pioneering research efforts and the personal experiences of those involved. The EBV-MS project, funded by Horizon Europe and led by the University of Bergen, aims to unravel why only some people infected with EBV go on to develop MS and whether targeting EBV can help alter the disease course or even prevent MS altogether.
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More than just a scientific initiative, the project brings together leading researchers, clinicians, and people living with MS to foster collaboration and accelerate progress toward better treatments. To communicate this mission, the newly released video features key voices from the EBV-MS project, including researchers, PhD students, and a person living with MS, all of whom share their motivations, hopes, and reflections on the impact of the research.
A personal and collaborative effort
For Professor Øivind Torkildsen, Deputy Project Coordinator, participating in the video was about more than just sharing research—it was about inspiring hope and fostering engagement. “I was motivated by the impact I believe our project could have on the future of MS treatment and the potential to stop the disease before it even becomes evident,” he shared. With over 20 years of experience in MS research and treatment, Torkildsen has witnessed significant advancements in therapy, yet he remains determined to push the field further. “The introduction of innovative therapies has transformed MS care, but we have yet to eradicate the disease. I hope this project will help move us in that direction.”
A central theme of the video is the importance of collaboration between researchers and patients. “Engaging with patients is always the most meaningful and impactful part of our work as doctors,” Torkildsen added, emphasizing that patient insights are invaluable to research efforts.
Dr. Sam Anandhan, a postdoctoral researcher in the MS research group at University of Bergen, echoed this sentiment, highlighting the bridge between lab-based discoveries and real-world clinical impact. “It is fascinating for us as scientific researchers to see the transition from bench to bedside,” she said. “Apart from solving scientific questions, I think it is also important to participate in societal activities that aim to have a positive impact on patients.”
A voice from the MS community
For Silje Tufta, who lives with MS and participated in the video, the motivation was simple: hope for a future without MS. “I wish MS would disappear, and hopefully, this research will help us get one step closer,” she said. Taking part in the video gave her a deeper understanding of the project’s objectives and the dedication of the researchers working toward a cure. “I’m more hopeful than ever after learning about the project and talking to the researchers. So many people are working together for the same goal!”
Tufta believes the video will help spread awareness, generate interest in MS research, and possibly even encourage investment in groundbreaking studies like this one. “I hope this video will bring more attention to MS research, give hope to people, and maybe inspire donations to support the project!”
The power of awareness and engagement
The EBV-MS video aims to not only inform the MS community about the EBV-MS project but also to inspire broader engagement from scientists, clinicians, advocates, and policymakers. “I hope this video will encourage more interest in MS research and bring hope to the community,” said Torkildsen. “By raising awareness, we can drive further advancements and move closer to a future without MS.”
Anandhan shares the same optimism. “This video will have a positive impact and give real-world hope to patients while motivating more researchers to join the fight against MS.”
With the launch of this video, the EBV-MS project invites everyone to watch, share, and take part in the conversation. Together, through research, collaboration, and awareness, the MS community is one step closer to changing the future of MS treatment and prevention.
Watch the video here and share it widely:
EBV-MS Video
Together, we can raise awareness and make an impact!