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Norwegian Multiple Sclerosis Competence Centre and Research Group

Measurement Properties of Assessment Tools

Background and vision

Measurement instruments should demonstrate good measurement properties to ensure high quality research. We wish to take part in investigating and developing sound instruments for use in clinical research.

Ongoing Projects

Psychometric properties of outcome measures for mobility, beyond walking speed, in multiple sclerosis: a multi-center study

Organized by RIMS; Rehabilitation in MS – European network for best practice and research (www.eurims.org).

Objective is to determine responsiveness of functional mobility measures, and provide reference values for clinically meaningful improvements, according to disability level, in persons with multiple sclerosis (pwMS) in response to physical rehabilitation. Thirteen mobility measures (clinician- and patient-reported) were assessed before and after rehabilitation in 191 pwMS from 17 international centers (European and United States). Data collection is completed and first results were published in 2018:  https://www.ncbi.nlm.nih.gov/pubmed/30333161

Please contact (local): Tori Smedal, Norwegian Multiple Sclerosis Competence Centre and Dept. of Physiotherapy, Haukeland University HospitalE-mail: tori.smedal@helse-bergen.no.

Psychometric properties of outcome measures for upper limb (multicenter study)

Organized by RIMS; Rehabilitation in MS – European network for best practice and research (www.eurims.org).Objective is to investigate responsiveness, convergent validity and floor/ceiling effects of upper limb (UL) outcome measures. In addition, association of rehabilitation with change on UL outcome measures and characteristics of UL rehabilitation at different disability levels will be investigated.  Data are collected pre-post rehabilitation by using a wide range of outcome measures. In addition, clinical data and extent, setting, coals and content are captured. Data collection is completed and analysis and publication is going on.

Please contact (local): Tori Smedal, Norwegian Multiple Sclerosis Competence centre and Dept. of physiotherapy, Haukeland University HospitalE-mail: tori.smedal@helse-bergen.no.

Silje Nødtvedt, Dept. of Occupational therapy, Haukeland University Hospital.E-mail: silje.nodtvedt@helse-bergen.no

Responsiveness of short and long walking capacity tests in multiple sclerosis: a multi-center trial(MC-Walking Study, part IIb)

Organized by RIMS; Rehabilitation in MS – European network for best practice and research (www.eurims.org).

The objective was to investigate responsiveness of different walking capacity tests and to explore factors that might explain changes in walking capacity. Data are collected pre-post rehabilitation by using a wide range of outcome measures. In addition, clinical data and information about the content of different rehabilitation programs were captured.  Data collection is completed and papers published. A new paper regarding which rehabilitation program elements are employed in real life and how they might impact mobility improvement in patients with MS, is in process.

Please contact (local): Tori Smedal, Norwegian Multiple Sclerosis Competence centre and Dept. of physiotherapy, Haukeland University HospitalE-mail: tori.smedal@helse-bergen.no.