Patients with acute intermittent porphyria (AIP)
Porphyria is a collective term for a group of rare inherited or aquired diseases caused by enzyme disturbances in the heme-synthethising pathway.
Some drugs may cause an onset of AIP within the patients with this rare enzyme disorder. The symptoms are abdominal pain, vomiting, tachycardia, hypertension, muscleweakness and -pain, mental disturbances, paresis, and at worst - respiratory failure.
The group coopertaes with NAPOS (national centre for porphyria), to gain more knowledge about these objectives:
- Which drugs can safely be used by patients with AIP, and which drugs may cause onset of symptoms?
- How can we best deliver this information to both patients with AIP and the health care personell that are treating them?